Information

Thank you for joining the “Band of Angels”. By purchasing and wearing this band you have and will continue to bring awareness about Angelman Syndrome to everyone you meet. If you have been touched by an Angel, then you already know how special they are. Those who have not will soon be asking you, “What is the blue band for”? This is your opportunity! Share your stories and let everyone know the wonders of Angels everywhere. Then ask them if they too would like to become a player in the band.

In 1965, Dr. Harry Angelman first described three children with characteristics now known as Angelman Syndrome (AS). Through intensive genetic research in the 1980's, a defect in a small region of the maternal 15th chromosome was discovered as the cause of AS. In 1997 the specific gene, which characterizes AS, was pinpointed.

At present there is no cure. "Angels" are cognitively disabled and the development of speech is not likely. Typically, language consists of 4 to 5 indiscriminate words. Although rare, some have up to 20 words. While Angels cannot speak, they do have much to say. Angels suffer from significant movement or balance problems and 80% suffer from difficult to treat seizures. A short attention span and a happy demeanor make Angels behaviorally unique. With a normal life expectancy, Angels require 24 hour, life long care.

Research continues every year and the Angelman Syndrome Foundation (ASF) provides a source for the collaboration of research and support for all those who have been touched by an "Angel". Because of this, 100% of the profits generated from the sale of these bands will be donated to the ASF.

For more information about Angelman Syndrome
visit www.angelman.org