100% of profits earned as a result of selling these bands will be donated to the ASF
ASF Walk-a-thon May 20, 2006 to donate go to www.firstgiving.com/andrew_h
Andrew's Medical Team
6308 8th Avenue, #3070
Kenosha, WI 53143
Ophthalmologist – Marilyn Mets, M.D.
Children’s Memorial Hospital
2300 Children’s Plaza
Chicago, IL 60614
Neurologist – Kent Kelley, M.D.
Children’s Memorial Hospital
2300 Children’s Plaza, no. 29
Chicago, IL 60614
Gastroenterologist – B. UK Li, M.D.
Children’s Memorial Hospital
2300 Children’s Plaza
Chicago, IL 60614
Geneticist – Barbara Burton, M.D.
Children’s Memorial Hospital
2300 Children’s Plaza
Chicago, IL 60614
Social Worker for Dr. Kent Kelley
Sarah Mass, MA LCSW
Children’s Memorial Hospital
2300 Children’s Plaza, no. 29
Chicago, IL 60614
Pediatric Dentist
Dr. Lori Kerber
2901 35th Street
Kenosha, WI 53140
Andrew's Prescriptions
Prilosec: Compounded & flavored. 20 MG, 5 ml every morning for reflux.
Keppra: Liquid. 100 MG. 2.5 ml every morning & 3.75 ml every evening for seizures.
Propranolol: Liquid. 20MG/5ML. 1.9 ml in am, 1.9 ml after lunch and 2.2 ml in pm for Cyclic Vomiting.
Zofran: 4 MG compounded suppository for anti-nausea during Cyclic Vomiting attack (abortive medicine used only during an episode) or 4-5 MG liquid, 1 tsp every 6 hours.
Diastat: 5 MG to be given if 3 seizures within 1 hour OR 1 seizure lasting more than 5 minutes.
Benadryl: 1 tsp as needed per vomiting episode.
Topamax: 50 mg sprinkles in am and 50 mg sprinkles in pm for Cyclic Vomiting.
Birth: July 3, 2001
Level 2 ultrasound (showed no birth defects)
Full term babyBirth – 6 monthsFormula intolerance
Poor suck
Reflux
Lack of sleep
Fair coloring
Hyper motoric movements
Slow physical growth
Small headFlat back of head6 months - diagnosis - StrabismusMRI for optic nerve hypoplasia (lead to endocrinology and then neurology)
Lack of developmental milestones (lead to Birth to 3 program)
June 2002. Contacted the Kenosha Achievement Center for Andrew’s developmental delays (early intervention program). By 1 year, Andrew was still not able to sit-up, crawl, walk or talk. Started speech therapy July 2002, occupational therapy August 2002 and physical therapy October 2002. Andrew aged out of the birth to three program in July, 2003. We hoped he would still get therapy through the program until he started in the early childhood program at our public school system. This did not work out and Andrew went a couple of months with no formal therapy.Andrew attends early childhoond 4 days a week now. He receives PT, OT and Speech in school. He also goes four days a week for outside therapies. He also has Hippotherapy twice a month at Midwest Therapeutic Equestrian Health Center in Union Grove, WI.
10/08/02 – Strabismis (exotropia) surgery with Dr. Mets @ CMH and upper endoscopy with Dr. Nelson. Anesthesiologist was Charles Cote. Andrew did great through surgery and was quite cooperative. Fell asleep (general) quickly. Day surgery and was discharged around 12:00 pm. Surgery to move muscles went great, did check on optic nerve hypoplasia and determined optic nerves to be at about 80%. Upper endoscopy came back negative. Dr. Mets recommended we see geneticist to determine if Andrew had albinism.10/17/02 – First physical therapy session with Jeanne Damaschke, KAC.
10/24/02 – 2nd visit with Dr. Pasternak. At a loss as what to do regarding further testing. Referred us to a geneticist.
11/11/02 – Dr. Barbara Burton, Genetics - CMH. Tested Andrew for Fragile X and Angelman Syndrome (blood draw). She told us just by looking at Andrew that he did not have albinism.12/02/02 – Angelman Syndrome diagnosis came back positive via methylation study. Angelman diagnosis within 3 weeks of genetics consultation17 months from birth to diagnosis
12/07/02 – Blood drawn at Kenosha Hospital for FISH analysis in order to confirm the exact etiology of AS in Andrew. The results were positive for a deletion.TIME TO SIT On the night of April 5th 2003, Andrew just decided it was time to "get out of sit". While he was sitting, he pulled his leg in and reached forward over the bent in leg. He then straightend out his legs and away he went commando style. We saw him do this and were so happy. After the celebration, we made him do it over and over again using his binki as motivation. Hopefully he will soon be getting into sit himself and accomplish his current goal.
*04/08/03 - First seizures (noticed) between 8:00 am and 4:00 pm- shaking (6 separate times lasting 10-15 seconds each) with intermittent vomiting and fever. He slept between seizures and never lost consciousness. Dr. Pasternak did not want to see Andrew today so Dr. Abraham checked him over and he seemed all right. She called Dr. Charles Swisher @ CMH and he would have prescribed Keppra had Andrew been his patient. Dr. Pasternak with Dr. Abraham’s help put Andrew on Phenobarbital elixir 20 mg/5 ml, 22.5 ml the first day.05/01/03 – Consultation with Dr. Swisher. He agreed to keep Andrew on Phenobarbital and would check on him in one month. Also gave Andrew a prescription for Diastat (rectal valium) in case he was to go into status. Decided to switch from Dr. Pasternak to Dr. Swisher.06/21/03 – Hippotherapy evaluation with Jen at Midwest Therapeutic Riding Program, Bristol, WI.
7/11/03 – 2 year check-up with Dr. Abraham. Weight 23 lbs., 7 ozs. Now on growth chart. If gagging continues, wants to do suck/swallow at CMH. She noticed his right eye to be wondering more than the last time she saw him. Wants to have Dr. Mets check it. Also thought he should see Dr. Nelson for gagging. Continue to sign and bring Andrew to a pediatric dentist at 2 1/2 years.
7/22/03 – First water therapy session at Jane Vernon School with Jeanne.
08/12/03 – Results from EEG were again abnormal, but typical of Angelman Syndrome (copy of EEG in neuro file). Seizures are thought to begin in the back of Andrew’s brain and are generalized. Dr. Swisher wants to start Andrew on Keppra, 250 mg, 1/2 tablet in am, 1/2 tablet in pm. After 2 weeks, increase the pm dosage to 1 full tablet. We will probably wait 1 week to give the prilosec more time to be effective and if retching/vomiting does not stop, we will start Keppra. If retching/vomiting stops, we can assume they were seizures. Dr. Swisher does not want to start Klonopin as it is a benzodiazepine, which he can become dependent on and hard to get off of. Topamax can slow response time and decrease Andrew’s appetite, so we want to wait on that as long as we can. If Keppra does not work, we will have to start with Topamax.
08/16/03 – Crawled upstairs by himself – no help.
08/21/03 – Danielle Hartung from Dr. Burton’s office suggested we contact Dr. Doug Nordli or Dr. Kent Kelley at CMH for seizures (they are epileptologists – neurologists who specialize in seizures, 773-883-6159).
09/04/03 - Saw Dr. Mets for 6 month follow up. Andrew tracked well following objects for Lisa and Dr. Mets. To insure that Andrew’s optic nerves had not deteriorated more, Dr. Mets wanted to dilate his eyes. After drops, exam showed nerves, which appear better than last time. The right nerve appears more “pitted” than the left. This would explain the rubbing and wandering of the right eye when upset or tired. We agreed that Andrew is probably not a good candidate for patching. Dr. Mets also feels that Andrew’s focus is fine and that at this point does not need any glasses do to sufficient vision. Follow up in one year unless we have any issues prior to then.
09/09/03 – Started Birth to 3 classroom with Cate Easton.
10/18/03 – Took 9 4-point crawling steps. Started getting into sit on his own. Pulls up to stand in crib and everything else.
12/11/03 - Jeanne brought over a different walker (push-type with no support) and Andrew pulled right up and started walking with it.
12/19/03 – Really communicating well by handing the things he wants to us.
12/24/03 – Made “debut” on Fox 6 Milwaukee News promoting Angelman Syndrome Awareness Day.
01/20/04 - Saw Dr. Kent Kelley @ CMH. Liked his style and interaction with Andrew. Decided to switch from Dr. Swisher to Dr. Kelley. Weaning Andrew off of Phenobarbital. 1/20/04 one tablet in morning and one tablet in evening. 2/20/04 one tablet in evening. 3/20/04 half tablet in evening. 4/20/04 no Phenobarbital.
02/09/04 – First dental visit with Dr. Lori Kerber. Everything looks great – all 20 teeth and no cavities. Try to get in Andrew’s mouth for one good brushing every day. Toothpaste not needed until Andrew is 3.
02/10/04 – IFSP goals set for next 6 months. Andrew will continue with Birth – 3 for summer. Nicole (service coordinator) contacting FSP to get Rifton chair for Andrew to use at home. Kristen called to confirm her starting back up with OT on 2/18/04.
1st Hospital Stay
*02/26/04 – Andrew started vomiting at 4:30 pm. Was running a fever around 101 so I gave him a Feverall at 5:00 pm. At 5:30 pm he started vomiting blood and started seizing. This time the seizures were tonic clonic. We took Andrew to Kenosha Hospital & Medical Center ER at 6:30 pm. Dr. Jim Concannon was Andrew’s ER doctor and Gail was his nurse. Gail took his temperature and it was around 101.6 – was given rectal Tylenol. Last blood vomit was around 7:00 pm. Dr. Concannon contacted Children’s Memorial Hospital and they advised him to transport Andrew by ambulance down to them. KHMC drew blood for CBC, etc. Gail inserted an ng (nasogastric) tube through his nose down to his stomach and suctioned out a small amount of blood. She then flushed out his stomach with a small amount of water through ng tube and then suctioned that back out. Gail & John (triage nurse) gave Andrew an IV. LJH Ambulance Service then transported us to CMH around 11:00 pm. We reached CMH about 11:45 pm and Andrew was admitted to room 682. Dr. Amir F. Kagalwalla (GI) was Andrew’s admitting doctor. Lisa K. was his night nurse. Two residents came in to take Andrew’s history. The nurses continued Andrew’s IV and gave him his antibiotic through it for his ear infection. He continued seizing and had several left side tonic clonic seizures where his left side from cheek down to feet was shaking. He was given more rectal Tylenol. Andrew continued seizing until about 3:30 am after he was given Diastat at 3:15 am. He then went to sleep. His Phenobarbital was given through IV during hospital stay and we gave him liquid Keppra during his stay.
02/27/04 – John called insurance company to admit Andrew in am. Dawn was Andrew’s day nurse. The GI doctor on call felt that Andrew’s blood vomit was from a small tear/fissure either in his stomach or esophageal lining from a forceful vomit. He did not want to scope Andrew because he was unstable and didn’t want him under general anesthesia. Was given Zantac through his IV to heal any lesions. We continued at home with Andrew’s Prilosec for same reason and ongoing reflux. Will meet with Dr. Nelson on 3/9/04 for follow-up.As for neuro – the resident on-call agreed that Andrew’s vomiting is seizure-related. Since he had tonic clonic seizing on his left side, the activity came from the right side of his brain. This side also controls nausea sensation. He increased Andrew’s Keppra to 250 mg in am along with his usual 250 mg in pm. We are to continue weaning him the Phenobarbital as planned by Dr. Kelley. Will meet with Dr. Kelley in about 1 month. Andrew was discharged at 3:30 pm. His behavior is back to normal with a little more tiredness than usual. The discharging resident on-call (Dr. McNeer) gave us prescriptions for Keppra (1 month to make up for the extra 125 we need to start giving Andrew every morning and also a script for Diastat with 3 refills. Directions for using Diastat are to give it to Andrew if he is seizing non-stop for 5 minutes or has 3 seizures within 1 hour).03/29/04 – Foot imprints made at Hanger Orthotics, Kenosha, WI.
03/30/04 – Walking with someone holding his hands.
03/30/04 – 2nd visit with Dr. Kelley following up Andrew’s hospital stay. Discussed keeping Keppra 625 ml a day and still weaning off of Phenobarbital. If retching continues, will call and try to get in to epilepsy center to video EEG to determine if retching is indeed seizures. Keeping track of retching/vomiting as could be CVS and will meet with Dr. B. Li at CMH if we suspect so. If Prilosec and Keppra do not work for Andrew, we will probably add in Depakote. Will see Dr. Kelley again in July 2004. Will put IEP plan together for seizure protocol. Wrote another script for Diastat 5 mg. Can give Diastat 2-3 times in a day if necessary. Using to give a relief period from seizure activity. Works within minutes after being giving and works it way out of system within an hour.
04/06/04 – Met with Pam Keating the special needs nurse from KUSD to make emergency medical plan for Andrew for 2004-2005 school year. Discussed that instructed adults from the school will give Andrew Diastat if he has 3 seizures within an hour or has a seizure that lasts more than 5 minutes. If they administer Diastat, they have to call 911 and I agreed. I also told them to call me if Andrew has 2 seizures within an hour.
04/12/04 – Received inserts for shoes from Hanger Orthotics.
04/13/04 – Met with Dr. Burton and Danielle for 6-month follow-up. They both were very pleased with Andrew’s progress and will see him again in 1 year.
04/15/04 – First hippotherapy session with Stephanie (OT) at Midwest Therapeutic. Andrew liked riding “Chipper” but would not keep his helmet on. Will ride every other Thursday (twice a month).
04/28/04 – Pam, Dr. Li’s nurse, called and took health information on Andrew. Sending forms in mail for me to fill out and send back, then she will schedule an appointment (about 2 months). Several meds used for CVS are: Zofran (anti-nausea med for chemo and post-surgery), Propranolol (blood pressure med), Periacitn (antihistamine), or Elavil (anti-depressant used for headaches).
04/30/04 – Transition meeting with Kenosha Unified School District (KUSD).
05/25/04 – First IEP.
05/27/04 – First visit with Dr. Li and his fellow Dr. Sunko. Andrew appears to have a lot of CVS symptoms and needs to proceed with more testing to rule out other medical issues. Scheduled are kidney ultrasound (CMH) and blood tests (during next vomiting episode, to be drawn at Kenosha Medical Center). Received prescriptions for Zofran (antiemetic) suppositories to stop an episode and Periactin (cyproheptadine), an antihistamine, for maintenance medicine after blood tests have been drawn. Andrew will continue on Prilosec (received another prescription) and will switch from Dr. Nelson to Dr. Li (no need to duplicate GI doctors as they work together). Follow-up in 4-6 months and keep a record of episodes. When a vomiting episode starts, give a dose of Zofran to abort episode and if that does not help Andrew to sleep, then give a dose of Benadryl. The plan is to get Andrew to sleep for a few hours and hopefully when he awakes, the episode will be over. If Andrew needs IV fluids, give him D10 0.2 normal saline @ 70 ml/hr following a bolus.of 130 ml.
06/05/04 – Started drinking from sippy cup (chews on sipper or lets milk pour into his mouth). Took bottles away. Spills a lot on himself so sometimes I give him another cupful (6 ounce cups each).
06/14/04 – Pat from Dr. Li’s office suggested the following protocol for CVS medicine therapy: One or fewer episodes during a month (that also are not severe) can be treated with abortive therapy (Zofran). Two or more episodes and/or more severe in nature (if 1 a month is severe) will be treated with daily maintenance med (Periactin) and abortive therapy during episode (Zofran).
06/14/04 – Dr. Kelley said it is fine for Andrew to take Periactin (1 side effect is excitability and seizures in children). If Andrew is doing fine this summer, no need to see Dr. Kelley in July. Schedule next appointment for January 2005.
06/22/04 – Had ultrasound done at CMH (unsedated) to rule out hydronephrosis.
06/23/04 – Pat from Dr. Li’s office called and Andrew does not have hydronephrosis (ultrasound negative) but possibly has a bladder problem as the ultrasound showed some sort of echo in the bladder. It could be sediment, a cyst, or a result of him not emptying his bladder completely. Will probably need to have a U/A done. She faxed the report to Dr. Abraham and I am waiting for her call on how to proceed. Andrew’s catecholamines are elevated (stress hormones) and we are waiting on the ACTH results for further information. Pat did say Dr. Sunko believes Andrew could have Sato’s CVS which is a subset of CVS which is tougher to treat. Requested information from CVS online.
06/29/04 – Brought Andrew into Dr. Abraham’s office for a U/A catheterization. Preliminary tests came back fine. Will check with lab in 2 days to see if there is a problem (blood in urine, etc.). If everything is fine, will do a repeat ultrasound in Kenosha in 1 month to make sure bladder has cleared itself out. If U/A comes back abnormal, will need to see an urologist.
07/01/04 – U/A came back negative.07/05 04 – Andrew’s 3 year check-up with Dr. Abraham. 36” ht. (20%) and 28.5 lbs. (10%). Everything is fine. Start taking binky away during day to help get rid of Andrew’s ‘security blanket’ in hopes of initiating better communication. Also suggested receiving speech therapy through Rehab West as more intense. Follow-up ultrasound scheduled for 7/29/04 (bladder).
2nd Hospital Stay
*07/12/04 – Woke up at 3:30 retching. Gave a Zofran at 4:30. Did not stop retching. Had 2 possible seizures during breakfast (milk) – 1 shaking for 30 seconds and the other staring without response 5-10 seconds. Started Periactin and gave another Zofran at 10:20. Retched again with shaking right after (seizure?) for 30 seconds. Started falling asleep shortly after Zofran. Put down for nap around 11:00. Noticed red splotches on Andrew’s skin around 2:00 pm so I brought him to Dr. Abraham. In the car Andrew started vomiting (3:00 pm). She checked him over and sent us to the ER for an IV drip, Zofran & Benadryl. It took 3 tries before they finally got it in (in his right foot). ER doctor was Dr. Fields and his nurse was Norman. Andrew had a 10-minute grand mal seizure, which was stopped with Ativan. He was transferred to CMH by LJH Ambulance about 11:00 pm and admitted by Dr. Sentongo under GI. Andrew was given 250mg of Phenobarbital to knock the seizure pattern out. He was also given Zofran throughout his stay. His night nurse was Natalie and his day nurse was Lisa B. He was discharged at 3:30 pm 7/13/04 by GI. Neurology never came to check on him or talked to us about his stay. He was very tired and groggy but had a great appetite. Picked up a cd of Andrew’s abdominal ultrasound and copy of report from 6/22/04.
07/21/04 – Increased Andrew’s Periactin to 3/4 tsp 2x day. First new dose given in pm today.
07/23/04 – Saw Dr. Mets. She thought Andrew’s vision was good, his optic nerve hypoplasia to be minimal and decided to patch good (left) eye, 1 hour a day. Will see her again in November. Surgery isn’t a good option now, as he needs to start using his bad eye. Maybe down the road if he starts using his bad eye, we can do surgery to correct alignment. Hopefully just using it will bring it into alignment. If he doesn’t start using his bad eye, he could lose vision in it.
07/25/04 – Started patching 1 hour a day.
07/25/04 – Increased Periactin to 1 tsp in am and 1 tsp in pm.07/29/04 – 2nd ultrasound done at Kenosha Radiology Center (KRC) as a follow-up from 1st ultrasound done 6/22/04 at CMH. The 1st ultrasound showed some debris in Andrew’s bladder. The 2nd ultrasound was done to see if debris has cleared away. Also had a urinalysis done in Dr. Abraham’s office (6/29/04), which came back normal. Andrew’s bladder was empty so after his kidneys were photographed I brought h
07/30/04 – Dr. Abraham called with results of ultrasound – everything is fine (clear). No need to do anything at this point.
08/11/04 – Spoke with Dr. Kelley on the phone about putting an emergency plan together for Andrew for Kenosha Hospital/St. Catherine’s if a cyclic vomiting/seizure cycle starts. Anything more would need transporting to Chicago. Will be mailing a copy to us and to Dr. Abraham.
08/13/04 – 2nd dental visit with Dr. Kerber. Everything looked good. Will go back in 6 months.
08/16/03 – Ordered bunk bed from This End Up. Should take 4-6 weeks for delivery.
09/02/04 – Met with EC teachers (Mrs. Rogers & Miss Betsy). OT is Kim & PT is Becky.
09/07/04 – First day of Early Childhood (EC). No problems (looking for mom though)
09/14/04 – Dr. Li added 1 tsp of Periactin at lunchtime so a total of 3 tsp every day.
09/23/04 – Second visit with Dr. Li. Try stopping Prilosec. If Andrew shows a need for it, increase dosage to 10 mls every morning. If no improvement with cvs in next 3 weeks, increase Periactin to 7.5 mls at night time (keep morning & afternoon the same at 5 mls each). Contact him if no improvement after adding increase. Dr. Li may talk with Dr. Kelley about changing seizure meds if cvs worsens.
10/26/04 – Upped Periactin to 2 tsp at bedtime.
NOVEMBER 2004- Andrew has been walking with assitance for quite some time now. He surprised us in early Novemebr by taking some steps on his own. This lasted for only a couple of weeks. I guess Andrew is not quite ready yet.
11/12/04 – Saw Dr. Kelley for check-up. He decided not to change anything we are doing right now. If Propranolol does not work for Andrew, he will probably switch to Topamax to control seizures & control cvs. If Andrew is transported to CHW, he knows neurologists Mary Zupanc & Michael Schwabe. Will coordinate with one of them. He did speak to Dr. Li about trying new seizure meds for Andrew if Propranolol fails after 4-6 months of trying. Dr. Kelley will keep Andrew on Keppra, add Topamax and if cvs stops, will wean Andrew off Keppra. Follow-up in 6 months. If Andrew is doing well, we can push appointment back.
11/25/04 – Slept in new bed all night! Got up once right after being put to bed, watched TV with us for half an hour and then went right back to bed and slept. Click the link to see Andrew's Cool Bed. http://www.angeland.org/Angelbeds/Andrew/Andrewbed.htm
12/15/04 – Met with Governor Doyle for photo signing of proclamation in Madison.
12/24/04 – Second appearance on Fox 6 Wake-Up with Mark Concannon to promote AS Awareness Day.
01/13/05 – Walked from classroom to front doors at school twice without help!
05/11/05 – Made 3rd appearance on Fox 6 News with Kim Murphy to promote bands and the walk-a-thon.
05/12/05 – Increased Propranolol to 1.9 ml’s in am, now back up to 1.9 ml’s 3x a day.
05/13/05 – IEP with Mrs. Rogers, speech, PT, augmentative tech & Megan.
JUNE 2005- Andrew is walking on his own. It is almost his primary mode of transportation.
06/10/05 – Visit with Dr. Mets. Decided to try putting 1 drop in good eye once a day to blur vision up close. One drop will keep eye dilated for 10 days. Will do research on drops before giving them to Andrew. Side effects of too much could be flushed skin, increased irritability. Will see Dr. Mets in 3 months if we decide to drop eyes, 6 months if we don’t (appointments are made). We will wait on moving muscles to a time where we feel eyes straight on are most important in Andrew’s development and that CVS is under control and cortisol levels are fine.
06/28/05 - Started dropping Propranolol following Dr. Li’s orders. Reduce from current 7.5 mg 3x a day to 2x a day for 1-2 weeks (dropped lunchtime dose), then give 7.5 mg at bedtime for 1-2 weeks, then stop. Call of email if breakthrough gets more frequent.
07/07/05 – New taper info from Dr. Li regarding Propranolol. At next decrease, drop to 5 mg 2x a day for 1-2 weeks, then 2.5 mg 2x a day for 1-2 weeks, then 2.5 mg at bedtime for 1-2 weeks. If Andrew continues to have more frequent breakthroughs, he may need to stay on it.
07/25/05 – Dr. Li suggested we bring Andrew up to the original dose of Propranolol. Will start by skipping lunchtime dose and will increase to it if needed (our thoughts).
08/26/05 – Follow-up with Dr. Kelley. Everything will stay the same and Andrew will follow-up in 6 months. May think about weaning Keppra at that time.
SEPTEMBER 2005- Andrew is OFFICIALLY a walker.
09/20/05 – Met with Linda Ryan at school for Andrew’s strabismus. After speaking with her, we will start to drop Andrew’s good eye with Atropine Friday evening, 9/23/05. Will wait until we see pupil starting to shrink back to regular size before dropping again. Will monitor his reaction to drops. Linda will consult without opening up IEP.
09/23/05 – Started Atropine drops (3:30 pm).
10/04/05 – Crawled into bed after school and fell asleep (put himself to bed).
11/29/05 – Saw Dr. Li. Keeping meds the same except will give 2.2 ml’s at bedtime. Will see Andrew in 6 months in new Milwaukee office. Will touch base with Pat if any problems arise until Dr. Li is settled in Milwaukee – probably by February.
12/01/05 – Saw Dr. Mets. Right eye seems to be tracking well. Will continue to drop eye until Andrew sees her again in March 2006. At that time, if right eye is still tracking well, we will stop the drops and see how Andrew uses his eye in the next 4-6 weeks. If he continues to use the right eye independently without drops, we may consider surgery in summer to move the muscles again.
02/13/06 – 6-month follow-up with Dr. Kelley. Increased Topamax to 50 mgs every morning & kept Keppra the same. If no seizures within the next 6 months, will start to wean off Keppra. Follow-up in Glenview this August.